Traveling with an invisible illness

After traveling for the past few months, I think that WEGO Health should have a mini course or webinar to share tips and advice on how,to make travel, which is hard enough without a health condition a little easier for those of us that do.

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Fantastic idea Amanda!

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Good Idea, here is one of the articles I’ve written on this topic over the years. http://barbyingle.com/how-to-travel-when-living-with-chronic-pain/

I also shared ideas in 2 of my books, iPain Living Magazine and a few other articles that can be found online.

I also really like this article https://www.huffpost.com/entry/how-to-travel-with-a-chronic-illness_b_57629a5be4b07d4d0a41bb47 By Elizabeth Pratt on the topic.

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That’s a great idea!!! I can travel still…but it definitely takes more WORK!

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A great idea. I #disabled #travel a lot and every time I find something new to make the experience easier for the next time. Maybe even a page dedicated to it on the blog would be useful as we can all add our hints and tips, or even we could have a #WEGOHealthTweetChat.

Wishing you wellness

Carole :butterfly::purple_heart::butterfly:

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Would love to have this discussion include other’s suggestions. Let’s start a list here!

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This is a fantastic idea!

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I agree! I struggle with traveling and the stress it puts on my body, would love to see what others suggest!

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I wrote a post about travelling with Chronic Pain, because I learned a few tricks from my own travelling and I wanted to share. Here’s the link if you’d like to check it out:

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Great idea! I have to travel a lot for work and this definitely makes it more difficult now. I have new “must have” items that I travel with, especially when flying. Of course depending on the particular illness one is battling these items and necessities will differ, but the “comfort” items I’d imagine will stay the same. Since I’'m always cold, fuzzy socks and a sweatshirt on the plane are a must. It doesn’t matter if I am flying to a destination that it 100 degrees, I will freeze until I get there. I also bring a neck pillow, but one in the shape of a tootsie roll (haha sorry for for that awful description) instead of the horseshoe shape, as it allows me to use it in several places besides my neck if needed. Noise cancelling headphones are also a big help. One more MAJOR item for me is Liquid IV which are packets you put into your water. I suffer from Dysautonomia and my blood pressure crashes a lot. This is intensified at different altitudes and the salt and electrolytes help stabilize me.

I’d love to hear what some of you do to make your travel a little easier! Thank you for taking the time to reach my experience :slight_smile: <3

Emily

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I live with type 1 diabetes and I hear often that others are afraid of traveling alone or have fears of traveling. I wrote a few blog posts on the issue to help others: https://theinsulintype.com/2018/02/25/tips-for-flying-with-type-1-diabetes/ and https://theinsulintype.com/2017/10/25/know-your-rights-free-medical-bag-when-flying/ . The last post is relevant for anyone who is traveling with medical supplies. Great convo starter - thanks for posting!

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Awesome idea! I feel we all have really good tips on this. We can even pool resources and whoever creates the course can set up a survey that people in the WEGO community and elsewhere, can answer. Then compile all the advice and tips. I know we all have different conditions but I’m thinking a lot of the advice can be universal and inclusive too.

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this is a great idea! and have you heard of spin the globe. she is awesome with giving great tips on traveling.

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Love this thread! Traveling has always been one of the only things that makes me truly happy, but being sick there’s always this added level of stress. What happens if I pass out in the middle of a public place in a foreign country where I don’t speak the language? It’s not going to stop me, but it still scares me sometimes.
I did write a blog post on how to manage Disney World with an illness if anyone needs tips!

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I travel quite a bit and after a severe traumatic brain injury, I wrote about it a lot on my blog Jessymunch826.com

Like checking bags, helps, boarding with people with disabilities, asking for help, having stuff planned out and double checking my seats as I have sat in the wrong ones. My blog has lots of tips, experiences and advise around travel with a TBI which is a chronic condition.

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This is a great idea! Travel is always a struggle because of how much planning it takes due to my Urea Cycle Disorder. I have lots of different tips & tricks I can suggest.

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